As most of our friends and family know our sweet baby girl Lillyana was diagnosed with Down Syndrome. Lillyana had enlarged kidneys and heart. She left us way too soon, born sleeping on 3/25/17. She shares a Birthday with her amazing big brother. It was devastating to lose her and something that will hurt forever. We will spend our entire life honoring her.
The Down Syndrome Resource Group is so important to us. When we first found out there was a likelihood Lillyana had DS, I immediately contacted the DS Resource Group of Western Mass, and they were amazing to us; sent us valuable resources as well beautiful books that really made us smile, and have hope. We knew from that moment on, we would be okay and could give her an amazing life as well as her give us so much joy. This makes losing her even harder. We wanted her to be here with us safe and sound so badly, but unfortunatly God needed her.
We would absolutely love if all of our family and friends could walk, raise money, while honoring our little girl. It would mean the world to us. Your contribution is greatly appreciated! Also please share!!
Thanks,
The Kelly's
Buddy Walk of Western Mass
Buddy Walk 2017! Sept. 30th at Stanley Park in Westfield, Ma
10am Registraion
11am Walk
Music, food and raffles following the walk.
Register to walk in event here.
The Down Syndrome Resource Group of Western Massachusetts was started in September 1999 by parents who had a common interest in sharing information and resources in caring for their children. The group provides information about family support, resources, parent training, and social opportunities.