Welcome to my Duchenne Muscular Dystrophy (DMD) fundraising page!
I'm very excited to take part in KKD Gravel 158 mile race where I will be biking to my mental and physical limits to raise money for DMD research in hopes of finding a treatment and cure for DMD--a neuromuscular disease that primarily affects boys and is terminal, usually leaving children wheelchair bound by 8 - 12 with a life expectancy of early 20's.
I hope you are able to contribute to this very worthy cause. Thank you for any amount you are able to give!
KKD Gravel--DMD Charity Bike Ride
KKD GRAVEL
Kasners Kick Duchenne (KKD) Gravel is a charity bike ride that raises awareness and money for Duchenne Muscular Distrophy (DMD).
The Kasner family have two young boys diagnosed with DMD. This ride is intended to raise awareness and money to fight this terrible disease for the Kasner boys and others who battle Duchenne, a rare genetic and eventually fatal disease.
There are four distances for this gravel bike ride, based around the number 79, which is a number that is significant in the DMD community —
17.9 MILE STROLL (17.88 miles w/ 454 ft of elevation)
HALF 79ER (44.3 miles w/ 1385 ft of elevation)
79 MILE CHALLENGE (80.46 miles w/ 3410 ft of elevation)
158 ULTRA ENDURANCE (161.99 miles w/ 5210 ft of elevation )
All distance rides start and stop at the Rambling River Park, which is thirty minutes south of the Twin Cities. Staggered start times from 6am through 11am. Routes will explore the gravel roads of Dakota, Rice, Le Sueur and Scott Counties, depending on your chosen distance. The gravel roads for these routes are unique in their familiarity, challenging, and you’ll love riding them.
There will be live music, a food truck, drinks, giveaways, a raffle and other good stuff. To ride in the event, a donation is requested.
All proceeds from this event, including your registration, go directly to the Flanigan Lab at Nationwide Children's Hospital, which is a 501(c)(3) non-profit organization that Kasners Kick Duchenne have partnered with for this event.
Funds raised through KKD Gravel go directly to the Flanigan Lab at Nationwide Children's Hospital, which is a 501(c)(3) non-profit organization that Kasners Kick Duchenne have partnered with for this event. The Flanigan Lab at Nationwide Children's Hospital will use your donated money on the Duchenne Muscular Dystrophy (DMD) frontline researching for a cure.
To date, after two years of holding KKD Gravel, it has raised over $22,000 in the fight against DMD!
KASNERS KICK DUCHENNE
The Kasner Family is made up of 4 crazy boys, AJ, Ben, Caleb and Dunky (ABCD), and their parents Sarah and Dan. They reside in South Minneapolis, MN, where they love their neighborhood and thoroughly enjoy the summers where they walk, run or bike wherever they go. AJ and Ben are college-aged and living their best life. Caleb and Dunky are 10 and 8 and are living a life different than any ever dreamed. Nearly 6 years ago, these boys were diagnosed with DMD.
DMD is a progressive, neuromuscular disease that primarily affects boys and is terminal as there is no treatment or cure. The disease happens because these boys are missing dystrophin, which is a necessary protein found in the muscles. With each muscle movement, muscles breakdown and build back up, but Caleb and Dunky's never build back up. So essentially they are losing the ability to move their bodies with each movement they make.
Kids with DMD are usually wheelchair bound by 8 - 12 and have a life expectancy around early 20's. In addition to their physically failing bodies, there are also behavioral issues that come with DMD, which are exacerbated due to the daily steroids they have to take.
Kasners Kick Duchenne was created to advocate for Caleb and Dunky by raising awareness and funds for research of this life-threatening disease in hopes of giving Caleb and Dunky and others battling DMD a long and incredible life!